Sarah
(with husband Kenny)
Idiopathic GP


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Hi. My name is Sarah. I am a 25 year old woman from Ohio  and this is my experience with GP.  

   In January, 2003 I went to work one day, not feeling the greatest, but I felt like I could make it through the day. About noontime, I became very ill; I threw up, had a high fever, and could barely walk. I called my husband to come and drive me home from work. He wanted to send me to the doctor’s office. I hated to go to the doctors so I convinced him that I would be OK, and all I needed was to get to bed. It was just a bit of the flu.

     The next day I was feeling a bit better. My boss was upset that I took half of the day off, so I decided to make up the lost time by working extra hours. I was still feeling sick, but not throwing up, so I decided that I could make it. I would work 8-12 hours a day, come home, and directly go to bed. I was warned by the receptionist that I would cause some serious damage by doing this to my body, but I did not listen. This continued for about two weeks.

     One day at work, I became violently ill with vomiting and finally I decided to go to the doctor's office. He said it that I was probably coming off a bug that was going around, cave me some industrial strength antacids, and blood work. If I was not feeling better in a week, come back. 

      By that time I was getting a lot worse. My blood work came out normal. My doctor thought it might be gallstones because I was having bad back problems too. So they sent me for an ultrasound. Oddly, it was quite painfully having it done because my stomach was so sore. I went back to the doctors a week later to find out everything was normal. 

     By that time, I was vomiting about 4 times a week and barely eating anything. I was put on a strict diet and was on 5 different medications. Nothing was working. Well, maybe I had an ulcer. or gastritis. Or maybe I was pregnant. But every thing was turning up normal. So I was sent to a GI specialist.

     My GI doctor thought it be best, since I was sick for such a long time, I should have an upper endoscopy done. That turned up normal. 

     By this time, I was dropping about 8 pounds a week. I could not keep anything down. I would not eat for days, surviving on nothing but orange juice and crackers.

     Then I went through another gall bladder test, upper GI barium swallow, more blood work, another pregnancy test, and a cat scan. I was getting to know the hospital staff on a first name basis. Everything was normal. I hated the word normal. I knew something was terribly wrong and cried every time something came back with the dreaded “normal” word.

      According to some, it was all in my head. To others it was anorexia, stress, pregnancy, a parasite problem, IBS, a way to get out of work, my boss, or it was a spiritual problem.

      I got all types of advice. Others tried to "cure" me. I felt like a science project of my family, friends and co-workers. I needed to pray more. I needed to eat nothing but cookies. I needed to be yelled at. I needed to have counseling. I needed to eat by my blood type. I needed to be force fed. I needed to work harder.   

      All I knew was I needed to find out what was wrong and I needed to get better!

       Something was clearly wrong. At that time I dropped 45 pounds. I was always on the small side, and I’m short, so a loss of 45 pounds is a lot! And I was still loosing weight. My GI doctor decided to do a gastric emptying test.

      This test showed that I had gastroparesis. It was a bittersweet feeling, I understood that it was not a problem that could be corrected easily by drugs or surgery, and I would probably live with this problem the rest of my life. But at the same time it was an answer, and that was the only thing that I wanted.

      I was placed on the drug Reglan, but that only made things worse. I was getting the horrible side effects from it without any benefits from it.  I was placed on the drug Zelnorm with the same story. I was also given Phenergan, although this gave me some relief I was still unable to eat without throwing up. My life was miserable. The only way I knew how to stay alive was to eat and throw up and hope that something drained through my stomach. I reached a point where I was not loosing weight even though I was only getting in 100-200 calories a day.  I believe my body knew it was starving so it tried to store every calorie it got. 

      Through the technology of the internet, I was able to meet others with this condition, and even one who lives in the same city and sees the same doctors! This has been the number one thing that makes GP bearable.  Having a friend that knows exactly what you are going through is worth more than anything.

      

     My GP had progressed so rapidly that my GI Doctor decided to send me to see Dr. Hasler at the University of Michigan . But my GP got rapidly worse that I had to be hospitalized before I could make the appointment. I suddenly went though a period of extreme weight loss. I dropped from 87 to 80 pounds in three days. This made a 37% weight loss since my symptoms appeared! I was unable to keep even water down. That’s when they decided to place a J-tube in.

 

     A week after my surgery my husband and I went to see Dr. Hasler. I was placed on Domperidone. That did not seem to relieve my symptoms so I had him do an endoscopic procedure involving Botox.  The Botox was not a miracle cure, but now I am able to eat a few bites of sugar and carbohydrates a day, as well as drink water.

    I have also gone to see a chiropractor to help with my stomach problems. This has helped me with the pain that gastroparesis can cause.

 

    Since my j-tube placement 6 months ago, I have gained 17 pounds! It is so much more comfortable to have a bit of padding around my bones! And I am able to work full time at my job, as well as doing freelance design work and taking care of my wonderful husband.

 

   Even though I still hope and pray every day for a cure, I pray more for strength to equal this path I must take. I have learned how to deal with GP on bad days. I have learned to be thankful for the good days. I have learned the importance of helping others and asking others for help. I have learned on how to put my faith and trust in God when all else seems to be hopeless. I have learned on how much my husband truly loves and cares for me. I have learned on how to fight against this condition rather than be a victim of it.     





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