Carol Pasinkoff

Bayside, NY
Contact Info: pasinkoffc@g-pact.org
(718) 225-1598
(888) URG-PACT x 85
Hours of Availability: Weekdays until 2 PM EST
Weekends all day, except evenings
As of Sept. 2007 I am 48 years old, married with three children ages 24, 21, and 15 and I have had severe idiopathic gastroparesis for 3 and 1/2 years. I initially lost 40 lbs from constant vomiting.
In July 2004 I was put on tpn through a PICC line. Unfortunately I had several infections, (one that was very severe in which I was hospitalized and close to dying) and had it replaced 9 times. Then the doctors inserted a Hickman Catheter which also became infected again and again and I had that placed 7 times.
In July 2005 I had the gastric electric stimulator placed at Temple University Hospital in Philadelphia which after several adjustments and over a year I finally stopped vomiting. However I still get symptoms of severe nausea, bloating, early satiety and pain whenever I try to eat a very small amount of food. I cannot eat enough to sustain myself. For this reason
and lack of additional vein access in June 2006 I had a J-tube placed for enteral feeding and a g-tube placed for venting. I take many medications for nausea (zofran, compazine, marinol and phenergan),for motility and colonic inertia (domperidone, cytotec, amitizia,and mirolax), as well as aciphex for GERD.
I have gained back half of the weight lost and have more energy than I had. Although I still have bad days where I am bedridden, I now have many days where I can live close to normal (except no eating) and participate in activities which I hadn't been able to do. This is a marked improvement.
|